Regrouping ~ It’s a Whoa is Me Moment
Last week, we traveled to John Hopkins Medicine Multiple Sclerosis Center for my annual appointment. We like their satellite office in Lutherville, MD, avoiding the traffic of their main location in Baltimore. Country bumpkin right here! Such a beautiful area located close to Towson. They even have upscale boutiques and restaurants right in the medical building. Smart business.
John Hopkins is known to be cutting-edge in the field of Neurology. In addition to treating MS patients, they are dedicated to ongoing research and conducting many clinical trials at their facility. Their common goal: 1) Find a cure for MS. 2) Find therapies to reverse and correct damage. Amen to that! Brilliant minds hard at work!
We were there for almost one hour. We both really like this doctor. He takes his time and explains his recommendations. That’s what I’m talking about! So grateful my husband was there to ask additional questions. I was zoning out at times as my mind was focusing on what he just said. I wanted to break out my computer to research that particular study and his current recommendations! Some things just don’t change. Advocacy is a good thing though.
Nearly thirteen years ago, when my disease was at its worse, I was taking Avonex to control my MS. Needless to say, I continued to have relapse after relapse and ultimately had a major attack which left me with significant lesion load, both of the brain and spine. This was so evident when he compared my MRIs. I always knew what the lesion load in my spine could mean or not down the road. That’s the uncertainty of MS. Obviously, Avonex was not controlling my disease. I was switched to Rebif* in 2002 and have had no new lesions and relapses ever since. PTL!!!
Recently, it’s been an interesting and sometimes tough road to manage. The past month has brought about new symptoms and challenges. As suspected, the lesions in my spine have decided to create trouble, challenging me both physically, emotionally and spiritually. Before writing this blog, I needed to take time to process these developments and regroup if you will.
In our home, my regrouping is called the “Whoa is Me” moment. I have my pity party, cry, get mad, have my private conversations with the Lord and yes, endure the comforting words from my husband. He’s so patient with me! After all is said and done, time to get back to being positive! Survival for me.
I will share my neuros current findings and recommendations in a future post. I have processed and accepted (again) MS is unpredictable, debilitating and quite frankly, frustrating disease. However, I will not allow MS to define me, consume my every thought or take away my joy! I chose to remain positive, to allow Him to strengthen me, teach me and give me the courage to persevere…He’s not done with me yet!
“Count Your Blessings”
*This is my own personal experience while administering DMD’s Avonex and Rebif. All DMD’s effect patients differently. Please contact your physician with any questions!