One Step, One Day at a Time
Have you ever been right in the middle of things settling down, feeling better when suddenly, bam, your world is completely turned upside down? I’m right there with you! That’s how I felt following my recent visit at John Hopkins.
I knew things were changing and slowing down, but I was hardly prepared to hear what was coming next. Here’s his brief summary:
• Rebif (DMD): My WBC’s were beyond low and quickly depleting, “Let’s try decreasing your Rebif to half dose (22 mcgs) and see if this will help. If not, we’ll look at other options.” I couldn’t even ask what that meant. By the way, “You may want to consider adding Simvastatin to your therapy. Studies have shown this may slow down brain atrophy.” Perfect…
• Swelling of the Feet: This is a newer, persistent symptom for me. Fluids are getting stuck at the base of my feet and ankles (“message not reaching to tell the fluid to keep on moving”). He provided a script for compression socks hoping this helps so I can exercise again. He had to hear, several times, how much I value the importance of a strong body to fight this!
• Great Toe Curl: Another newer symptom. Who would have thought spasticity of the big toe. Huh? I’m scheduled to receive a Phenol injection to release and control this spasticity. I had the same injection treatment previously in my calf. Definitely helps to walk when your toes are straight…lol!
One slight detour, right? Makes me stop, think and questions myself. How am I going to handle this detour? Where am I being re-routed to? Are these detours God’s way of trying to tell me something? Yes? No? What? What?
Life’s detours and roadblocks require processing and adjusting. Extremely necessary and healthy to do. Important to remember and trust God is allowing all circumstances in my life for good, even though I may not always understand or agree. One thing remains true and certain, He will be right by my side, providing His strength, His love and His perseverance to see me through. For that, I can smile.
What detours do you face today? What’s standing in the way of God’s best for you? With Him, there’s no need to fear or look back, focusing only on tomorrow, one step, one day at a time!
“Count Your Blessings”