Home again, home again! The simple pleasures of life for sure! My temporary home for three weeks at Bryn Mawr Neuro Rehab Hospital was well worth the stay. I didn’t think I would ever say that. The days were long and demanding, allowing for necessary rest and of course, time to eat…and eat I did!
With this busy schedule, I really didn’t have much time to think about the long day or the projected length of stay. In fact, they originally thought I needed 3-5 weeks of “acute” therapy to safely be discharged. Rest assured, I did everything they asked while keeping their common goal in mind…MOD I…Moderate Independence.
Each morning began at 5 am with meds, breakfast, the nurse dressing you, and wheeling you to the sink to prepare for the day. It wasn’t long before “transportation” would arrive and wisk you off to the gym for therapy. Upon completion, your therapist parked you at the “bus stop” aka, waiting line, for your transporter to take you back to your room.
To be honest, the first week truly was the hardest. Not necessarily the therapy, but my raging emotions and thoughts were constantly on my mind. I was trying to wrap my head around what was going on? What progress could actually be made? Would I be able to get out of my bed? To ditch the bed pan and use the commode? To shower? To dress myself? Was I being realistic or in denial? What? What? What?
All I could do was pray without ceasing. My saving grace. I needed to turn this hardship right over to Him and trust He knows exactly what He’s doing even when I couldn’t begin to understand…again!
I knew this mindset would sustain and encourage me to think positively and do what needed to be done. All I wanted to do was to get better, get home to my husband and dance with my son at his wedding. Let the therapy begin!
The Schedule ~
PT (Physical Therapy) – Typically consisted of ½ to 1 hour sessions throughout the day. Their primary focus was building strength, walking, managing steps, adjusting my BalanceWear vest to help with balance issues, building endurance and strategic use of the walker. This was a starting point. I went from 20 steps with a walker on admission to 225 steps upon discharge. Progress!
OT (Occupational Therapy) – Consisted of ½ to 1 hour sessions too. Their focus was to provide tips for every day independent living. I learned exercises for my upper body and hand strengthening, lots of tips while having therapy in their “apartment.” Cooking in the kitchen – yep, went through the strategic planning to make a grilled cheese while conserving energy and using a walker. Aides to help with safely using the toilet and a shower bench (I found the bench allows me to really conserve energy). One great tool was a “leg lifter” – allows me to get one stiff leg, that refuses to bend, into the bed on my own! That’s what I’m talking about!
RT (Recreational Therapy) – Consisted of 1 hour sessions 2-3 times a week. I quickly learned why this therapy was scheduled – fun for the patient. We all need a break and this was perfect! Activities included going to the horticultural center. My favorite, digging in the dirt. The group would transplant veggies and flowers while standing/sitting to work on strength and balance. Visit with the therapy dog support team – smiles abound for all attendees as they enjoyed time with these amazing dogs. Finally, a field trip! “What? I asked.” She responded, “A change of scenery is always good and gives you an opportunity to practice using your new found friend, the walker .” They helped by providing tips to get in and out of a car, managing sidewalks, opening doors to business, and everyday life skills. At first, I wasn’t sure this was really necessary, but I found it rather helpful. Our destination? Dunkin Donuts! One of my favorite places. Iced mocha coffee provides great incentive!
Brain/Spinal Cord Trauma Education Series – I really had no idea what this meant or how I would benefit from attending. I was game! Afterall, it was on my schedule so it must be important. That it was! A psychiatrist headed this small, intimate ”support group” of patients with varying conditions: Parkinson’s, Stroke, MS, and GBS (Guillain-Barre Syndrome). We discuss our fears and concerns, management of respective disease, and everyday coping tips.
I am forever grateful for my stay at the Neurological Rehab Hospital. They saw my potential to improve and willingness to do whatever I could to hit the goal of MOD I. I didn’t disappoint. With my new-Pfound independence (while at a much slower pace) allowed me to dress myself, transfer to a wheelchair, shower using a bench and actually do my morning routine at the sink…hair, makeup and brush my teeth! I really didn’t realize how much it meant to be able to do these simple, daily tasks! 🙂
Praises to hear the words that you’re ready to go home!!! I can’t begin to describe the overwhelming feeling that I can regain strength and walk again. While it’s not the prettiest gait, I’m ready to see how far I can push myself to see additional improvement…outpatient therapy, here I come!
During this time, I couldn’t help but feel so lucky to have a brilliant medical team through out my admission, the friendships that were made, and the humor that helped to brighten each day. It became clear to me that God truly did know what He was doing, bringing me right where He needed me to be, just as I am.
All information discussed and blogged on So I Have MS…Now What? represents my personal experiences and opinions only. It's my recommendation, should you have any questions or concerns, to contact your neurologist or physician to discuss what is best for you. Please note, I am not financially compensated by any company or manufacture. My sincere thanks to Motion Therapeutics for helping this non-technological MSer set up this blog! Have a blessed day!