Author Archive: Cath

Round One…Tysabri

Finally, all the moving pieces required from the wonderful world of managed care, aka, Capital Blue, (required appointments, lab work, precertification for specific infusion center, and my medication) I was cleared for my first infusion of Tysabri!   It’s been several months of uncertainty, doubt, fear, and yes, why me? Why do I have to …

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Survey Says ~ Wednesday

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A Kid in the Candy Store ~

Nothing beats the aroma of my kitchen filled with fresh produce and herbs each week from our local  CSA (Community Supported Agriculture).  With CSAs, consumers contract with their farmers to receive a share of their weekly, organic harvest.  We’ve been members for nearly three years now and love it! I tend to be a kid …

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MS Breaking News

Been an interesting week here as I battle the wonderful world of managed care with one goal in mind…precertification!  Without it, Tysabri infusions will not occur. Meanwhile, I received an alarming email I had to share.  MultipleSclerosis News Today headlined: https://multiplesclerosisnewstoday.com/blog/2016/08/15/cvs-drops-big-name-ms-drugs-from-2017-formulary/. I personally have CVS Caremark and verified the truth behind this article.   It …

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Survey Says Wednesday…

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Moving Pieces Coming Together…

Such a busy month here with PT, doctor visits, and practicing my patience (does that ever get better) while awaiting “3-4 weeks” to receive the results from my recent blood work. My “Now Whats” were literally hinged upon these results as we decide the next treatment for my MS progression. Week four and still no call …

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Unraveling Continued…

The unraveling of my “Now Whats” continued.  This week, we ventured down to the University of Virginia to see Dr. David Jones.  My long time MS Neurologist here at home until assuming his new role at UVA several years ago.  I can still remember the day he told us about this big move!  He was …

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“Now What’s” Unraveled

It’s been a rather busy few weeks in our neck of the woods.  The continual rain has subsided allowing the many benefits only mother nature can bring this time of the year. The birds are chirping and nesting, the flowers begin to bloom and yes, our defiant groundhog made her grand appearance from her sleepy …

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Survey Says ~ Wednesday

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Home Again, Home Again!

Home again, home again!  The simple pleasures of life for sure!  My temporary home for three weeks at Bryn Mawr Neuro Rehab Hospital was well worth the stay. I didn’t think I would ever say that. The days were long and demanding, allowing for necessary rest and of course, time to eat…and eat I did! …

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