Category Archives: Living with MS

Round One…Tysabri

Finally, all the moving pieces required from the wonderful world of managed care, aka, Capital Blue, (required appointments, lab work, precertification for specific infusion center, and my medication) I was cleared for my first infusion of Tysabri!   It’s been several months of uncertainty, doubt, fear, and yes, why me? Why do I have to …

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A Kid in the Candy Store ~

Nothing beats the aroma of my kitchen filled with fresh produce and herbs each week from our local  CSA (Community Supported Agriculture).  With CSAs, consumers contract with their farmers to receive a share of their weekly, organic harvest.  We’ve been members for nearly three years now and love it! I tend to be a kid …

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Unraveling Continued…

The unraveling of my “Now Whats” continued.  This week, we ventured down to the University of Virginia to see Dr. David Jones.  My long time MS Neurologist here at home until assuming his new role at UVA several years ago.  I can still remember the day he told us about this big move!  He was …

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Home Again, Home Again!

Home again, home again!  The simple pleasures of life for sure!  My temporary home for three weeks at Bryn Mawr Neuro Rehab Hospital was well worth the stay. I didn’t think I would ever say that. The days were long and demanding, allowing for necessary rest and of course, time to eat…and eat I did! …

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Unexpected Surprise…

So sorry for being away from blogging lately.  Just wanted to touch base with an update. My MS had been acting up lately.  Just last week, my legs and feet became peg-legs and were hard as rocks. They just wouldn’t bend. My feet literally felt like they were stuck in mud. Blurred and double vision …

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The Next Chapters…

We all face bad days, trials, struggles, don’t we?  Just the mention of this fact probably brings instant thoughts of specific moments.  At times, you may feel rather overwhelmed, frustrated, angry and quite frankly helpless. Others may feel as if these moments are never-ending, one thing right after the other, with the inability to see …

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An Oldie but Goodie ~

Are you fortunate enough to have  a physician who takes the time to listen to you?  Help you manage the unpredictability of your respective disease?  When you do, it definitely makes each day a little brighter knowing you’re in good hands. I was more than happy to travel to see the experts at John Hopkins …

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Let’s Get Physical…

We all know that exercise is good for our overall health, right? Yet, many find it difficult to motivate themselves to start, especially with a condition like MS or similar challenges. I can find myself frustrated or defeated before I even begin!  At times, it’s easier to say, I really don’t want to, why bother, it …

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Snow, It’s Winter After All!

Snow, snow, and yet more snow!  It’s winter after all!  The blizzard, Jonas, paid a visit to the east coast over the weekend, depositing a mere 26 inches here.  Not one thing you could do to slow or stop the paralyzing effects of this snowstorm.  Our whole area was completely shut down.  As I looked …

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The Joys of Posting…

Getting back to doing what I enjoy very much, blogging. Writing has always been a struggle for me.  So many ideas and topics are constantly churning in my mind.  Finally, it’s time to post!  I find myself often staring at the blank document page as I attempt to formulate my thoughts.  Notes abound as I …

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