Tag Archives: God

Round One…Tysabri

Finally, all the moving pieces required from the wonderful world of managed care, aka, Capital Blue, (required appointments, lab work, precertification for specific infusion center, and my medication) I was cleared for my first infusion of Tysabri!   It’s been several months of uncertainty, doubt, fear, and yes, why me? Why do I have to …

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Moving Pieces Coming Together…

Such a busy month here with PT, doctor visits, and practicing my patience (does that ever get better) while awaiting “3-4 weeks” to receive the results from my recent blood work. My “Now Whats” were literally hinged upon these results as we decide the next treatment for my MS progression. Week four and still no call …

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A Chance Meeting ~

Sometimes in life we’re so fortunate to have the pleasure to meet some amazing people.  Often, we don’t even recognize the impact they have on our lives until we take the time to reflect, smile and clearly see God’s hand in it all.  I experienced that with one special MSer. I fondly remember when I …

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Never-Ending Story…

The sometimes never-ending story lingers.  MS continues to wreak havoc with me.  My frustration shared on my previous post, Brain Freeze, quickly transferred into feelings of anger, fear and helplessness.  I needed to understand what was happening with my progression?  All kinds of thoughts raced through my mind…Now What? The infection of my foot was …

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Kids, Kids, and More Kids!

That’s right! Kids, kids and more kids!  They come in many different ways – just like us and well, the energetic, very happy and playful four-legged variety, G.O.A.T.S ! I received a great gift from my BFF, goat milk soap.  Her church was running a fund-raiser to help ease the financial burden of a couple …

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BFF’s Hit the Road

What happens when BFF’s hit the road for a weekend getaway? Plenty! Priceless time together, lots of laughter and meaningful conversations. We couldn’t wait to attend Living Proof Live with Beth Moore in Atlantic City, NJ. If Beth Moore is unknown to you, let me take a moment to introduce one amazing woman! She is …

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“Blessed”

Another appointment down. Today, I received an injection to my knee, not for MS reasons, but for a partially torn meniscus and warding off surgery. Talk about benefits right there! As we approach the long holiday weekend here in the states, I’m looking forward to rest, relaxation and enjoying my husband and puppers. I am …

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The Importance of “Me” Time

It’s a crazy, busy life we lives today and the one thing I don’t always recognize is the importance of “me” time. The never-ending daily responsibilities tend to prevail: spouse, family, puppers, meals and activities. I love my life and wouldn’t change one thing. Before my blog break, I did recognize the need for “me” …

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Wrinkled Toe?

My slight detour, due to that spastic, great toe curl, prompted a visit to my physical medicine doctor earlier this week. This nuisance  is quiet frustrating. After all, it’s difficult to walk gracefully with a curled toe, isn’t it?!? Little did I know, my great toe would become my wrinkled toe. Let me share. So …

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One Step, One Day at a Time

Have you ever been right in the middle of things settling down, feeling better when suddenly, bam, your world is completely turned upside down? I’m right there with you! That’s how I felt following my recent visit at John Hopkins. I knew things were changing and slowing down, but I was hardly prepared to hear …

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