Tag Archives: MS

Round One…Tysabri

Finally, all the moving pieces required from the wonderful world of managed care, aka, Capital Blue, (required appointments, lab work, precertification for specific infusion center, and my medication) I was cleared for my first infusion of Tysabri!   It’s been several months of uncertainty, doubt, fear, and yes, why me? Why do I have to …

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Survey Says ~ Wednesday

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A Kid in the Candy Store ~

Nothing beats the aroma of my kitchen filled with fresh produce and herbs each week from our local  CSA (Community Supported Agriculture).  With CSAs, consumers contract with their farmers to receive a share of their weekly, organic harvest.  We’ve been members for nearly three years now and love it! I tend to be a kid …

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Survey Says Wednesday…

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Unraveling Continued…

The unraveling of my “Now Whats” continued.  This week, we ventured down to the University of Virginia to see Dr. David Jones.  My long time MS Neurologist here at home until assuming his new role at UVA several years ago.  I can still remember the day he told us about this big move!  He was …

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Survey Says ~ Wednesday

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Home Again, Home Again!

Home again, home again!  The simple pleasures of life for sure!  My temporary home for three weeks at Bryn Mawr Neuro Rehab Hospital was well worth the stay. I didn’t think I would ever say that. The days were long and demanding, allowing for necessary rest and of course, time to eat…and eat I did! …

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Caregivers…Our Special Blessings

When I think about caregivers, my hubby, family and dear friends immediately come to mind.  Their unconditional love, care, ability to listen, to lend a shoulder to cry on, and even crack a joke to lighten my day is priceless.  My true lifelines! Today, I’d like to share with you an interview of one amazing …

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Survey Says ~ Wednesday

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Survey Says ~ Wednesday

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