Tag Archives: Advocate

Clinical Trials ~ No Thank You!

♦ February 16, 2016 ♦ 3 Comments

Previously, I began tackling the results from Survey Says ~ Wednesday question: Clinical Trials…Sign Me Up!  We took a look at the popular response, “Maybe.”  Today, let’s look at “No.” We know there is no cure for MS (and many other diseases) or options for patients with progression.  We have symptom management treatments at best. …

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Advocacy Means Hope

♦ July 20, 2015 ♦ 7 Comments

It’s been a long and interesting few weeks working on my neuro’s recommendations for my MS “Now What?” Appointments, appointments and you guessed it, more appointments.  Next, follow-up with prescription supplier – and the fun continues! As I mentioned in my post, Life as We Know It, her recommendations made good sense to switch DMD.  My neuro submit …

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Location, Location, Location…

♦ March 10, 2014 ♦ Leave a comment

“Location, location, location.“  We know the importance of that statement when it comes to buying a home.  This catch phrase also applies to the many symptoms of Multiple Sclerosis. Where are the lesions located? Will they decide to wreak havoc?  That’s the unpredictability of this disease.  Let’s take a look. The most common symptoms reported for …

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Managed Care at Its Finest…

♦ February 6, 2014 ♦ 2 Comments

Managed care at its finest.  Say no more!  In today’s world, medical and prescription insurance benefits are a priceless commodity while managing a chronic illness.  Following diagnosis, one thing  I valued at work was my health benefits.  The ability to keep my finances in perspective. Currently, can the same be said?  With the ever-changing policies, …

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Owning My Decision ~ Inspiration

♦ November 19, 2013 ♦ 2 Comments

In our home, we always followed what we called the 3Ds…dedication, determination and discipline.  I found myself taking those same 3Ds and using them as my source of inspiration and for the journey I was about to begin, the quest for a new DMD (disease modifying drug.) There were only two options available at that …

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